Our aim

As mother and son we have struggled with this MPSII disease together since 1994. Both physically and mentally we have lived through meny very hard moments.

We have been left to ourselves in this, apart from friends and family. We had no knowledge about these sort of diseases. Most things we have learned through books and the Internet.

We are now able to understand some of what lies ahead of us.
The days to come will not be easy.

However, we know we are not alone in this country.
There are many more children and families here in Turkey that suffer in a similar way.

Let’s find one another.
Let’s seek to overcome these hardships together.

There is no other website about this issue in Turkey.
Let’s create this one together.

Let’s show the path for those coming after us.
May they suffer less than we have.

Let’s get to know one another
- and overcome our difficulties together!

Sincerely Yours /Nalan Çetin

Contact telephone: 0 232 347 53 11

Please, feel free to e-mail us:
mpsturk@mynet.com

This site is dedicated to Emre Çetin
suffering from MPS II, Hunter Syndrome.

2/5 2006: Normally, Emre doesn't open his eyes.


2/5 2006: Emre can not sit anymore.


6/12 2004: Emre together with his sister.


21/11 2004: For Emre not to fall he sits on the floor.


6/12 2004: He still has some balance and if he if he wants to he can sit in the couch on his own!


6/12 2004: Sometimes he seems to be so full of thoughts.


21/11 2004: We come close to him to get his attention - and sometimes we can make him laugh!

Look at these adorable children! We borrowed these pictures from the MPS Society in the UK.


If you also have beautiful pictures like these, please send them to us!